
October 23rd, I got in the car around 630am, with my family and drove 2 hours to go walk. Why drive so far just to walk? Well it was not just a simple walk to exercise, it was a walk for the hydrocephalus association. I love raising money and volunteering for good causes, but this one touches home and I would not miss this walk for anything. I gathered with about 100 people that lives are touched by hydrocephalus..they may have it themselves, or have a children or grand child that has it, or maybe they just know someone with it, and want to raise money and awareness in honor of them. There is no cure for hydrocephalus, there is only treatment. So what in the world does Hydrocephalus even mean? Hydro=water, and cephalus=brain, it has been known as water on the brain, or water head baby, but more scientifically it is the abnormal accumulation of cerebrospinal fluid on the brain. Everyone has 'water' on their brain, but some people may be born with to much, or later on in life accumulate too much. Having to much 'water' is BAD, and if not taken care of fast, can lead to brain damage and other medical problems.
 |
| Debbie and Mom |
When I was 4 weeks old I went to the doctor for my month checkup, and when the doctors measured my length, weight, and head, they noticed something was wrong. My length and weight was in the 15th percentile and my head was in the 90th percentile. This was not normal and sent my parents with me to the hospital to have a CT scan. (My parents had no clue what was going on ) Just a few moments later, my parents were told that their 4 wk old baby had hydrocephalus!
"What in the world is that," they asked. What would you do, if you learned your baby had something you didn't no what it was, possibly couldn't say it along with even trying to spell it? A week later, I under went brain surgery. Number one reason for babies to have brain surgery to hydrocephalus. In the picture to the right, is my mom and Debbie. Mom says and believes that Debbie was a God send to her. The doctors had all the medical things to worry about, but mom needed questions answered as to how to tend to a 5 wk old baby under going surgery, and Debbie had just been through all of it, so she was able to be there for mom. Debbie's son is 6 months older than me, and has a shunt on the opposite side of mine. Through surgeries in the first years of my life, Hunter and I grew up together, having our parents share stories and be support for each other. Gladly we still live close by, and are able to get together for some special events.
 |
| Elizabeth, Cory, Haylea |
Here are 3 young adults that were diagnosed with hydrocephalus near birth. Hunter was not able to make it to the walk, but one day we will have all 4 of us in the picture. I met Haylea two years ago at the walk and we have stayed in touch, keeping up with each other. Haylea and I met Cory, this year. I love meeting people that are close to my age that deal with living their lives with hydrocephalus. It something that is very special, because it saved all of our lives and we wouldn't be able to gather today if it wasn't for the treatments that we live with.
Out of 1000 babies born, 2 are diagnosed with Hydrocephalus. It is more common then you think. Sadly it is not known, and most people think that it is no big deal. ( I have even heard some people making jokes about it..makes me want to scream.) There is NO cure! I like to ask random people if they know what hydrocephalus is, and most people look at me like I am crazy or think that I am kidding and making up a word. Thats sad. If I walked around asking people if they knew what Spinal Bifida was, they could.. but not hydrocephalus.. and they are equally common! I hope that you have now learned something.

In this picture, is a combination of the Hydro Walkers(my team) and Team Bryson and Team Norris. This picture means the world to me. My team consisted of me, Debbie and Haylea. My mom wanted to have her own team, so she and my dad (and i guess my dog Skittles). And finally team Bryson. Leanna and Brennan were told when Leanna was pregnant with Bryson, that he would be born with Hydrocephalus. Through the word of mouth, they got connected with us and we shared some information with them. Bryson was born in May, and as of now has still not undergone shunt surgery, but is being watched very closely. Bryson and I are both Caldwell County babies. :) It made me jump for joy, when I heard they were coming. Leanna learned that no one really knows what hydrocephalus is, and wanted to raise awareness for the cause! These people are part of my family!

To finish out this blog, I hope that if you didn't know what hydrocephalus was, now you do. But even if you knew, or didn't and want to learn more, just let me know! And if you know any one with Hydrocephalus, share my name with them and tell them to get into touch with me. I love being an advocate for hydrocephalus and want to help anyone out with learning about it, giving a shoulder, and being a friend. I love telling people about Hydrocephalus, and have given many presentations about it! Hydrocephalus Association is in my heart, and everyday i wear it. I wear a Hydro pin, and a Hydrocephalus bracelet!